An estimated one in five Australians has arthritis. It costs the economy about $23.9 billion annually.
Arthritis is not yet curable but with early and proper diagnosis as well as a customised management plan, it can be controlled. Treatment for rheumatoid arthritis has improved markedly as understanding of the disease process improves. With early aggressive therapy using new designer agents, remission can be achieved in over 50% of patients.
Arthritis ACT supports various universities, most notably the University of Canberra, with translational research and with early carer research placements.
Click here to view latest research articles on Arthritis, Osteoporosis and Musculoskeletal Health.
Juvenile Dermatomyositis Study
“Kia ora, hello, my name is Megan Jeffries. I am completing a Master’s thesis at Massey University exploring the experience of children aged 5-12 years old and their parents undergoing treatment for Juvenile Dermatomyositis in New Zealand, Australia, and the UK.”
“I invite you to participate in this research as there is currently a gap in the literature exploring the experiences of parents and children undergoing treatment for rare chronic illnesses. Often spending long periods in and out of the hospital for treatments and appointments, I aim to explore the holistic support the children and their parents are offered and to identify areas where it could be strengthened.”
Participant identification and recruitment
- Participants must be the parent of a child aged between 5-12 years undergoing treatment for juvenile dermatomyositis.
- Participants must reside in New Zealand, Australia, or the United Kingdom as these countries share a similar healthcare model.
- Participants must be over the age of 18 years.
- Participants must have access to a strong internet connection to enable completion of the survey.
- The survey will be in English.
- Two parents can complete the survey but we ask you to complete two separate surveys.
https://massey.au1.qualtrics.com/jfe/form/SV_5t0jyLYng51ogF8
